What really matters at the end of life | BJ Miller | TED · TED
本视频探讨生命尽头的真正需求，包括舒适、尊重与爱。适合练习情感表达和人生哲理类话题。
Well, we all need a reason to wake up.
嗯，我们都需要一个起床的理由。
For me, it just took 11,000 volts.
对我来说，只需要 11,000 伏特的电压就可以了。
I know you're too polite to ask, so I will tell you.
我知道你太客气了，不好意思直接开口询问，所以我决定主动告诉你。
One night, sophomore year of college, just back from Thanksgiving holiday, a few of my friends and I were horsing around,
大学二年级的一个晚上，刚从感恩节假期回来，我和几个朋友在一起闹着玩。
and we decided to climb atop a parked commuter train.
我们决定爬上一列停在那里的通勤火车。
It was just sitting there, with the wires that run overhead.
它就那么静静地躺在那里，头顶上还有那些电线穿过。
Somehow, that seemed like a great idea at the time.
不知为何，在当时那个想法似乎非常棒。
We'd certainly done stupider things.
我们当然也做过更愚蠢的事情。
I scurried up the ladder on the back, and when I stood up, the electrical current entered my arm,
我迅速爬上了车子后部的梯子；当我站起来的时候，电流传入了我的手臂。
blew down and out my feet, and that was that.
一切都崩溃了，一切都完了……就这样。
Would you believe that watch still works?
你相信吗？那块手表现在仍然可以正常使用（即它仍然在计时）。
Takes a licking!
虽然受到了严重的打击（或损伤），但依然能够坚持下去！
My father wears it now in solidarity.
我父亲现在戴着它，以表达自己的支持与团结之情。
That night began my formal relationship with death -- my death -- and it also began my long run as a patient.
那个夜晚，我与“死亡”之间正式建立了某种联系（这种联系其实指的是我自身的死亡过程）；同时，我也开始了作为病人的漫长旅程。
It's a good word.
这是个很好的词。
It means one who suffers.
这意味着“一个受苦的人”。
So I guess we're all patients.
所以我想，我们所有人其实都是“病人”（即需要接受某种治疗或帮助的人）。
Now, the American health care system has more than its fair share of dysfunction -- to match its brilliance,
如今，美国的医疗体系存在诸多问题（这些问题的严重程度远远超出了“正常范围”）。不过，与其在某些方面的卓越表现相比，这些缺陷似乎也在情理之中……
to be sure.
当然可以。
I'm a physician now, a hospice and palliative medicine doc, so I've seen care from both sides.
我现在是一名医生，专门从事临终关怀与姑息医学方面的工作，因此我对这两种医疗护理方式都有深入的了解。
And believe me: almost everyone who goes into healthcare really means well -- I mean, truly.
相信我：几乎每一个进入医疗行业的人都是出于好意——我是说，他们真的是这么想的。
But we who work in it are also unwitting agents for a system that too often does not serve.
然而，我们这些从事相关工作的人，其实也在无意中成为某个“系统”的代理人；而这个系统往往并不能真正服务于人们的需求（或：这个系统常常无法发挥其应有的作用）。
Why?
为什么呢？
Well, there's actually a pretty easy answer to that question, and it explains a lot: because healthcare was designed with diseases,
其实，这个问题的答案相当简单，而且这个答案也能解释很多现象：因为医疗系统的设计初衷就是应对各种疾病（即疾病的出现和传播）。
not people, at its center.
其核心并非“人”。
Which is to say, of course, it was badly designed.
也就是说，这个产品的设计显然很糟糕。
And nowhere are the effects of bad design more heartbreaking or the opportunity for good design more compelling than at the end of life,
在人生的最后阶段，糟糕的设计所带来的负面影响最为令人痛心，而优秀设计所带来的改善机会也最为引人注目。
where things are so distilled and concentrated.
在这里，一切都被高度浓缩、精炼到了极致。
There are no do-overs.
人生中没有重来的机会。
My purpose today is to reach out across disciplines and invite design thinking into this big conversation.
我今天之所以这样做，是为了跨越不同的学科界限，将“设计思维”引入这场重要的讨论中。
That is, to bring intention and creativity to the experience of dying.
也就是说，要为死亡这一过程注入目的性与创造性（即让死亡成为一种有意义、富有创意的体验）。
We have a monumental opportunity in front of us, before one of the few universal issues as individuals as well as a civil society:
我们面前面临着一个重大的机遇——这关乎我们每个人以及整个公民社会共同面临的少数几个具有普遍性意义的问题之一。
to rethink and redesign how it is we die.
重新思考并重新设计人类死亡的方式。
So let's begin at the end.
那么，我们就从结尾开始吧。
For most people, the scariest thing about death isn't being dead, it's dying, suffering.
对大多数人来说，死亡最可怕的地方并不在于死亡本身，而在于死亡的过程——也就是在临终前所经历的痛苦。
It's a key distinction.
这是一个非常重要的区别。
To get underneath this, it can be very helpful to tease out suffering which is necessary as it is,
要深入理解这个问题，将那些不可避免的痛苦区分开来会非常有帮助。
from suffering we can change.
通过痛苦，我们可以实现自我改变。
The former is a natural, essential part of life, part of the deal, and to this we are called to make space,
前者是生命中自然而不可或缺的一部分；我们必须为它腾出空间。
adjust, grow.
调整、成长。