My philosophy for a happy life | Sam Berns | TEDxMidAtlantic · TEDx Talks
Sam Berns患有罕见病Progeria，但他以积极心态面对生活，分享了他快乐生活的哲学。适合练习英语口语和听力，了解励志故事。
Transcriber: Bob Prottas Reviewer: Ariana Bleau Lugo
转录者：Bob Prottas 审稿人：Ariana Bleau Lugo
Hello everyone.
大家好！
I'm Sam, and I just turned 17.
我叫萨姆，刚刚满17岁。
A few years ago, before my freshman year in High School, I wanted to play snare drum in the Foxboro High School Marching Band,
几年前，在我上高中一年级之前，我想加入福克斯伯勒高中 marching band（校乐队）并担任小军鼓手。
and it was a dream that I just had to accomplish.
那只是一个我必须实现的梦想罢了。
But each snare drum and harness weighed about 40 pounds each, and I have a disease called Progeria.
但是，每个小军鼓和相应的固定装置都重约40磅；而我患有一种名为“早衰症”的疾病。
So just to give you an idea, I weigh only about 50 pounds.
为了让你们有个概念，我的体重只有大约 50 磅（约 22.7 公斤）。
So, logistically, I really couldn't carry a
从物流角度来看，我真的无法携带那个东西。
regular sized snare drum, and because of this the band director assigned me to play pit percussion during the halftime show.
我使用的是标准尺寸的军鼓；正因如此，乐队指挥安排我在中场表演期间负责演奏场边的打击乐器。
Now pit percussion was fun.
现在，用石头敲击地面来制造声音确实是一件很有趣的事情。
It involved some really cool auxiliary percussion instruments, like the bongos, timpani, and timbales, and cowbell.
这次演出使用了一些非常酷的辅助打击乐器，比如邦戈鼓、定音鼓、通贝鼓以及牛铃。
So it was fun, but it involved no marching, and I was just so devastated.
虽然过程挺有趣的，但并没有任何行进或类似的活动；我感到非常失望（甚至可以说是崩溃了）。
However, nothing was going to stop me from playing snare drum with the marching band in the halftime show.
然而，没有什么能够阻止我在中场表演时与行进乐队一起演奏小鼓。
So my family and I worked with an engineer to design a snare drum harness that would be lighter,
因此，我和我的家人与一位工程师合作，设计了一种更轻便的军鼓背带。
and easier for me to carry.
对我来说，携带起来也更加方便。
So after continuous work, we made a snare drum apparatus that weighs only about 6 pounds.
经过持续的努力，我们终于制造出了一种重量仅为约6磅的军鼓装置。
I just want to give you some more information about Progeria.
我只是想再向你们提供一些关于早老症（Progeria）的更多信息。
It affects only about 350 kids today, worldwide.
目前，这种病症在全球范围内仅影响约 350 名儿童。
So it's pretty rare, and the effects of Progeria include: tight skin, lack of weight gain, stunted growth,
这种情况非常罕见，早衰症（Progeria）的常见症状包括：皮肤紧绷、体重增长缓慢、生长发育受阻。
and heart disease.
此外，还与心脏病有关。
Last year my Mom and her team of scientists published the first successful Progeria Treatment Study, and because of this I was interviewed on NPR,
去年，我的母亲和她的科学家团队发表了首项关于早衰症治疗成功的临床研究。因此，我接受了美国国家公共电台（NPR）的采访。
and John Hamilton asked me the question: "What is the most important thing that people should know about you?"
约翰·汉密尔顿问我：“关于你，人们最应该了解的是什么？
And my answer was simply that I have a very happy life.
我的回答很简单：我拥有非常幸福的生活。
So even though there are many obstacles in my life, with a lot of them being created by Progeria,
尽管我的生活中充满了许多障碍，其中很多都是早衰症导致的，
I don't want people to feel bad for me.
我不想让别人为我感到难过。
I don't think about these obstacles all the time, and I'm able to overcome most of them anyway.
我并不会一直想着这些障碍，而且无论如何，我都能克服它们中的大多数。
So I’m here today, to share with you my philosophy for a happy life.
所以，我今天来到这里，是为了与大家分享我关于幸福生活的理念。
So, for me, there are 3 aspects to this philosophy.
对我来说，这种哲学包含三个方面的内容。
So this is a quote from the famous Ferris Bueller.
这是一句出自著名演员费里斯·布勒尔（Ferris Bueller）之口的台词。
The first aspect to my philosophy is that I’m okay with what I ultimately can’t do because there is so much I can do.
我的哲学理念的第一个核心观点是：对于那些我最终无法完成的事情，我能够坦然接受；因为事实上，我有太多事情是可以做到的。
Now people sometimes ask me questions like, "Isn’t it hard living with Progeria?"
现在，有时候人们会问我这样的问题：“患有早衰症的生活难道不很艰难吗？
or "What daily challenges of Progeria do you face?"
或者：“你面临着早衰症（Progeria）带来的哪些日常挑战？
And I’d like to say that, even
我想说的是，即使……
though I have Progeria, most of my time is spent thinking about things that have nothing to do with Progeria at all.
虽然我患有早衰症，但我大部分时间都在思考那些与早衰症毫无关系的事情。
Now this doesn’t mean that I ignore the negative aspects of these obstacles.
这并不意味着我会忽视这些障碍所带来的负面影响。
When I can’t do something like run a long distance, or go on an intense roller coaster, I know what I’m missing out on.
当我无法做一些事情（比如长距离跑步，或者乘坐刺激的过山车）时，我就会明白自己错过了什么。
But instead, I choose to focus on the activities that I can do through things that I’m passionate about,
但我选择将注意力集中在那些可以通过自己热爱的事情来开展的活动上。
like scouting, or music, or comic books, or any of my favorite Boston sports teams.
比如童子军活动、音乐、漫画书，或者我喜欢的任何一支波士顿体育队伍。
Yeah, so --
是的，那么——
However, sometimes I need to find a
然而，有时候我需要找到某个东西（或某个人）。